Douglas’ Story: Chronic Kidney Disease

During their 19-week ultrasound appointment, Sherry and RH’s excitement turned to terror when they were told their son’s bladder was abnormally large. To save their baby’s life, Sherry underwent fetal surgery. When Douglas was born, he was diagnosed with chronic kidney disease, and a rare birth defect called prune belly syndrome. Yearning for answers and action, Sherry received resources from National Kidney Foundation, and began personally spreading the word about kidney disease. Now almost three, Douglas has already been through 15 surgeries, but remains a happy, active little boy who loves tractors, Mickey Mouse, and playing with his older sister. Despite the many challenges he faces, his parents know he’s strong enough for the fight. His mother reflects on their health journey: “I want everyone to know about kidney disease, for people to get tested to become living donors. Not just for our son when the time comes, but for others waiting for the gift of life.”