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News and Events > Neurofibromatosis

Every May, the Children’s Tumor Foundation – a member charity of Community Health Charities – works in increase awareness of neurofibromatosis, the most common neurological disorder caused by a single gene. Neurofibromatosis, better known as NF, occurs in one of every 3,000 births.



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National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing complications through education, advocacy and research.

Stories of Caring

In August 2006, Heather Ziegler was busily preparing to move her family to Japan. The time had come for Heather and her children to join her husband, Chief Petty Officer Scott Ziegler, a 19-year veteran of the Navy, in Japan where he had been stationed for more than a year. It was during that hectic summer Heather noticed a lump on her son Roman’s neck.
 
 

 

 


 
 

 
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